Friday, April 18, 2014

Hospice care

September 29, 2013 was the day my great grandmother took her last breath. It's very hard to discuss, because we all loved her very much, and just thinking about it brings me to tears. My grandmother got very ill one day, and we couldn't figure out why so we rushed her to the hospital. The doctors ran tons of tests, but couldn't find anything. Until they tested her for cancer. She was diagnosed with stage four stomach cancer, and there wasn't anything they could really do. Hitting almost eighty years old they didn't want to provide chemo, because there was a huge possibility that the cancer would get worse, and shorten her life. The doctors told us she had six months to live, and hospice was the best option for her. As a family it was hard for us to actually believe she was going to leave us in a matter of months. She was a firm believer that everything was going to be okay, but we all had to face reality. After she was released from the hospital the hospice process started in her home, and it wasn't an easy journey. As days, weeks, months went by she started to slowly shrink. Her memory deteriorated, and things got worse over time.  She was given her last dose of medication, and that's when she took her last breath. The pain was unbearable for her. She fought as long as she could, and I hope that when it's my time I'll be as strong as she was. R.I.P grandma I love you.

A hospice carer is someone who provides support for a patient who is in their last stages of life. A hospice carer doesn't just support the patient, but helps the family manage through hard times . They're required to make sure that the patient feels as comfortable as possible. This care can either be offered in the home, or in an hospital. This type of carer is required to provide all the supplies needed for the home/ hospital medically. Provide the family with different ways to cope with the passing of their loved on, and also provide spiritual care. These norms are important, because losing someone is never easy so it's important for a hospice carer to provide as much support as possible, and make everyone feel comfortable in such a tragic situation. If these norms are not transgressed then many issues arise. Not only for the patient, and family, but for the person/ people providing the care. This kind of care is important because it gives families different options, and it's also very personal. It allows you to have a choice about the care you want to receive, and gives you the chance to die with dignity. If this type of care isn't done it limits your options. A lot of people like my grandmother wanted to pass away in her own home, and not in a stinky old hospital.She wanted to be around her family, and friends before she died. Hospice allowed this to happen. 

There are many different governmental/ institutional structures involved in this care such as social workers. They help you with paper work, and also help you understand the system of hospice care. Spiritual advisers help guide you, and give the religious approach to things instead of the medical approach. It also help patients, and families be at peace with themselves.Therapists are extra help along side the doctor. Different types of therapists help with certain things. All of the structures involved are definitely needed to help you along the way. They may be a pain in the butt at that point in time, but each and every one of them are needed. In this type of situation all of the parties involved help provide some type of efficiency to the patient, and their family.

It is our duty to empathize with and care for others, because imagine being in that situation, how would you want someone to treat you? When you're on your death bed you want support from your family, and friends. Knowing that you have that love and support around you makes it much easier for you to die in peace. There may be times when a person isn't deserving of the care they receive, but sometimes you just have to swallow your pride, and be a good citizen. Towards the end of the novel  Never Let Me Go Tommy makes a decision to no longer have Kathy as he carer, and his health starts to go bad. He realizes that he doesn't want Kathy to see him in such bad condition, so they say their final good byes when he makes his fourth donor donation. When a person is gone all you have left are memories rather good or bad, so it's best that you cherish every moment you have with that person. When you get into fights make up, it may be hard but sometimes you have to put your pride to the side, because you never know when it's your time.

1 comment:

  1. I know how difficult it is to loose a grandmother and I'm sorry for your loss. I also know what it's like to be a hospice care worker because I work in a nursing home where we sometimes have residents go on hospice if they don't require hospitalization. I agree that it is our duty to emphasize and care for others, but do you think there is a way to care for someone without getting personally attached? Where I work they tell us not to get attached, and yet obviously we still have to care for the residents. From my experience so far, I do think it is possible to give a resident or someone on hospice a lot of care and attention, but at the end of the day when you go home you have to try and let go and detach yourself from the situation. It's a really hard thing to learn how to do, but it's far harder to try and deal with feeling a personal loss every time a resident passes away. I think, like Kathy, it is okay to feel proud of your work and what you are accomplishing as a hospice worker, but I definitely think Kathy thinks about it more from a "job well done" perspective than a personal one.

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